Have you signed the SMA petition?
Posted on October 25th, 2010When Gwendolyn Strong was diagnosed with SMA Type I, her parents Bill & Victoria, started the online petition in attempts to gain Congress’ attention. This petition is in support of the SMA Treatement Acceleration Act, which was initially introduced in Congress in 2007 and was reintroduced in 2009. The passage of this legislation will help researchers [...]
This is SMA…meet Angel Lyla
Posted on October 15th, 2010
In the words of her parents, Jen & Steve…. Lyla Jacqueline Mertz was born September 30, 2009 and appeared to be a perfectly healthy baby girl. When she was 2 months old, she caught her first illness – the common cold. She had always been a great “eater” up until this point, but she [...]