Your financial support has helped make differences in the lives of so many Fighting SMA.  Donations made through Sweet Baby Zane help two specific charities;  Families of SMA and The Gwendolyn Strong Foundation.  We felt it was important to share with you how your donation will be put forth into supporting others.   So if you are looking at this site and thinking of making a donation In Memory of Zane, and asking yourself “What does my money go?”, see the answers below.

Families of Spinal Muscular Atrophy (FSMA)     

I remember when I first found out that Zane should of been using an adaptive carseat.  She had been diagnosed with SMA for 3 months and we were unaware of this need of hers.  She should of been using a carseat that lies flat to help her breathing.  Instead, she had been riding her a regular, rear- facing  infant carseat where at any time she could of stopped breathing.    When I called to get her an adaptive carseat, our insurance wouldn’t cover it, so we had to foot the bill.  It didn’t cost as much as it does now.  Why?  because in a short amount of time, there has been great advances in the carseat technology.  What these children require is called Hope Car Bed.  It is medically & developmentally appropriate for children with Type I SMA.  Each car bed is $975- an expensive cost if your insurance company is not helping you! 

So, to alleviate that stress and cost, we buy the Hope Car Beds for the families and have them shipped directly to their home.  Here’s a picture of sweet Scarlett in her Car bed.   

Families of SMA thoughtfully attached a picture of Zane and a note stating “This carbed has been donated to you by Keith & Hillary Schmid, in Memory of their daughter Zane,”  on each bed. 

To date (12/2011),  54  Hope Car Beds have been bought and are currently being used. 

Additionally, The SBZ team funds the additional two items:

1). Creating the Introductory to SMA Manuals for families, individualized for each state.

2). Downloading CD’s of SMA facts, basics, and resources in native languages & mailed to families across the world.

The Gwendolyn Strong Foundation/ the GSF

GSF was created by Bill & Victoria Strong in Honor of their daughter Gwendolyn.  Gwendolyn is an adorable 4 years old with Type I SMA.  She continues to beat the odds!  The GSF is a widely known, non- profit, and hard working charity.  They have and continue to do amazing things in the field of SMA.  GSF supports the following:

1).  The latest ground breaking SMA research-  gene therapy and stem cell research

2).  Technology- supporting the needs of children with SMA

3).  General Support

We are happy to be associated with the above charites.  We work closely with them and respect them as professional organizations.  Thank you from all of us for your donation.

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