They opted to get tested
Posted on April 17th, 2012When Zane was diagnosed, my cousin & friend, Erin and her husband, Mike, were expecting their first child. They welcomed their daughter in August of 2009. She is an adorable, thriving 2 1/2 year old! Erin & Mike would like to expand their family. They have always been some of our biggest supporters Fighting SMA. With [...]
Remember….
Posted on April 12th, 2012…”If you know someone who has lost a child or lost anybody who’s important to them, and you’re afraid to mention them because you think you might make them sad by reminding them that they died, they didn’t forget they died. You’re not reminding them. What you’re reminding them of is that you remember that [...]
The. Crib.
Posted on March 25th, 2012For almost three years, Zane’s crib has been the same as it was when the paramedics pulled her out of it in the early morning hours of June 16, 2009. The stuffed animals still in the corners of the crib, the indentations of her body still present in the adaptive mattress, and the oxygen canula [...]
A Family in Need
Posted on March 19th, 2012On Thursday, March 15th, a terrible thing happened to a Pennsylvania family. Around 6 p.m., their home was set ablaze by an arsonist. The father was home with his 18 month old son, Ford. Ford has Type I SMA. Ford’s father called 911, then called his father (Ford’s grandfather), who lived next door to come help. [...]
Helping Hand Benefit
Posted on March 6th, 2012Come out for a fun and casual evening while listening to the great musical talent of Rugby Road. This event benefits two childrens’ charities: Youth Mentoring Partnership & Sweet Baby Zane. Additional details: -$20 admission (included dinner buffet) -cash bar -50/50 raffle -event in the upstairs ballroom -Youth Mentoring Partnership www.youthmp.org Hope to see you!
What’s coming up!
Posted on February 26th, 2012There are several events coming up and we hope to see you at one of them! 1. A Helping Hand for Our Kids event. Friday, March 9, 2012 Beneficiaries include Youth Mentoring Partnership & Sweet Baby Zane. Featuring the music of the Awesome band, Rugby Road Location- The Great American Pub (upstairs ballroom) in Conshohocken, [...]
February
Posted on February 3rd, 2012When I was growing up, I always joyously looked forward to the month of February. We would take family ski vacations, we usually would get one big snow storm, and most importantly, my birthday! The last couple of years, the month of February have not been so kind to me and my family. The [...]
A Success in Newark
Posted on January 19th, 2012Yesterday’s SMA fundraiser & Awareness Event was a great success! The 12 hour event raised needed funds and helped inform people about the facts of this disease. It was held at Shenanigans Pub & Grub in Newark, Ohio. With 10% of each bill & the total from the raffles, $911 was raised for Families of [...]
Onward and forward
Posted on December 31st, 2011I would like to start this post by thanking everyone who has supported our family and help us continue to Fight SMA. I hope you all know that what we have donated in Memory of Zane absolutely could not of been possible without your support & believing in what we are fighting for. Additionaly, people [...]
Introducing B & B!
Posted on December 9th, 2011We are thrilled to announce the arrival, albeit a bit early, of our sons Brennen Keith & Braxton Kyle. They boys entered the world on Saturday, December 3rd. The story goes: For the last 30 years or so, the first Saturday in December meant Christmas Tree hunting. Many of our family members go, it’s a [...]