Thanks for helping raise over $125,000 for SMA Recent Posts Featured Posts
Dear Shoppers, If you are going to be doing online shopping, why not hit two birds with one stone? Throughout the year, you can click on the link below and shop from hundreds of stores. A percentage of the proceeds are donated to SMA research. How great is that?! Today, you can rack up savings [...]
Today, we are proud to announce that Not A Fire Exit, the debut novel of author Christopher Finlan (with a foreword by Hillary Dunlop Schmid), will be available starting December 5th. A launch party will be held at the Desmond Great Valley Hotel in Malvern, Pa, from 2 – 4 p.m. on the same day. [...]
Hello Friends, As you know, my sister Kristen has been very involved in our ongoing fight to find a cure for SMA. Kristen and her partner Lucy are real estate agents in the Devon, PA office of Long and Foster. They have collaborated with our good friend Ron Bradly, a Sr. Loan Officer with Capital Financial Mortgage Corporation. Together, they have [...]
Please watch the video created by our friend Victoria. She is the mother of Gwendolyn, a 22 month old beautiful little girl who has SMA. So many precious little boys & girls are pictured. Zane’s picture is shown at 1 minute 48 seconds. http://www.youtube.com/watch?v=DncMkpqn_xo If you have not already signed the petition, please do so at www.PetitionToCureSMA.com [...]
This is a video that a friend of ours, Amy Pruett from Society Hill Studios created for our daughter Zane’s fundraiser. The best way to view it is to click play, then pause, let it load, and then play again. Amy picked the most beautiful songs by Mat Kearney, Closer to Love & Breathe in, Breathe out. Enjoy!
